That the process to get to a formal diagnosis can take so long.And that an aggressive response to the possibility is appropriate in the meantime. Get involved in a study like PPMI if possible. And subscribe to relevant reputable YouTube channels (separate post if there is interest)
My rheumatologist was the first MD to suggest I consult a neurologist re possible PD. When I mentioned this to my PCP, she promptly issued referrals for not only the neurologist, but physical therapy and a neuropsychologist. PT made sense after a specialist performed a PD-specific assessment a month later which supported a PD diagnosis. It led to me getting therapy for balance and gait training. My daughters encouraged me to follow up with more exercise.
The other two referrals took several months to schedule, but the neuropsychologist’s testing provided a useful baseline for the future. The neurologist didn’t issue a definitive diagnosis for well over a year.
My participation in the PPMI study has provided me with additional information and insights. Again, a separate post later, if there is interest.
That the process to get to a formal diagnosis can take so long. And that an aggressive response to the possibility is appropriate in the meantime. Get involved in a study like PPMI if possible. And subscribe to relevant reputable YouTube channels (separate post if there is interest)
My rheumatologist was the first MD to suggest I consult a neurologist re possible PD. When I mentioned this to my PCP, she promptly issued referrals for not only the neurologist, but physical therapy and a neuropsychologist. PT made sense after a specialist performed a PD-specific assessment a month later which supported a PD diagnosis. It led to me getting therapy for balance and gait training. My daughters encouraged me to follow up with more exercise.
The other two referrals took several months to schedule, but the neuropsychologist’s testing provided a useful baseline for the future. The neurologist didn’t issue a definitive diagnosis for well over a year.
My participation in the PPMI study has provided me with additional information and insights. Again, a separate post later, if there is interest.